Achieving Inclusivity through Codesign with Underrepresented Voices
Explore how The People's Network aims to tackle health inequalities and support digital inclusion through inclusive codesign with underrepresented voices in the NHS. Learn about strategies to empower participants, stimulate equitable access, and create better research conversations for better service development and design.
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Achieving inclusivity through codesign with underrepresented voices Equality, Health Inequalities and Digital Inclusion Shabira Papain October 2020
The Peoples Network Mission: To stand up The People s Network which compliments the Clinical Network and Digital Nurse Network. Vision: We want the communities we serve to feel confident in using our digital services and tools by inviting underrepresented voices into NHSX. Objectives: To support the uptake of digital technology throughout the NHS by sharing insights, leadership and lived experience as well as inspiring our communities to do the same. To better understand what good tech looks like and to challenge how it can be utilised to support patient agency, and self management. Outreach into communities, with a focus on underrepresented voices, will support our ambitious targets to widen reach and participation.
The NHS creates many face to face and digital services and engages with users of the service in different forums Engagement via NHS panels, stakeholders, PPI, Patient Voices Digital health products, experiences and information Face to face health experiences
Often systems struggle to access, hear, understand or act on feedback from communities with protected characteristics Access Face to face health experiences Digital health products, experiences and information Engagement Hear Understand Act The Equality Act 2010 protects people in nine protected characteristic groups from discrimination in the use of services and employment. These are: age, disability, gender reassignment, marriage (including same-sex marriage and civil partnerships), pregnancy and maternity, race, religion or belief, sex, sexual orientation.
The Peoples Network aims to tackle health inequalities and support digital inclusion Face to face health experiences Digital health products, experiences and information Engagement The Peoples Network Stimulating equitable access by creating better research conversations with people from communities with protected characteristics To Help recruit and engage research participants To provide EHIDI focused research To better inform service development and design To create a feedback loop to participants, so they can see the difference their participation makes To facilitate diversity in feedback panels within the NHS To provide insight to teams beyond the trial projects To empower participants to engage with the NHS To empower participants to manage their health and wellbeing.
The Peoples Network aims Give Voice: To strengthen participation and feedback from communities with protected characteristics with NHS when it is considering, designing or implementing and iterating new technologies. Embed Understanding: To set good practice standards to ensure all research and insight ensures the voices within these communities are heard, understood correctly and acted on. Embed More Diverse Voices: To encourage participation in wider NHS groups juries etc. Expanding Agency: Through the act of participation, to feel confident to interact with the NHS and to take control of their own health and wellbeing. Building Trust: that the NHS is listening and acting upon the ideas and feedback from people in communities with protected characteristics. Create Feedback Loops With Participants: To feedback to those communities on the impact their involvement has had.
There are some real world consequences of not getting our conversations right... and therefore opportunities to create better user experiences and bring other benefits to health and social care 40% of people that should be shielding in the Covid pandemic never received advice from NHS. The NHS spends 400m a year on sending paper letters to people. We don t ask users what their preference might be. Largely because we didn t have the correct contact information.
Principles Think data and analyse with digital inequalities lens Engage with a wide range of citizens/stakeholders Increase confidence and trust through listening and acting on insights from stakeholder engagement Ensure products are accessible through user focused research Collaborate Power of Community
