Cancer Registry Data Collection and Analysis
Cancer registry abstracts capture patient information from diagnosis throughout their life, including demographics, diagnostic workup, treatment details, and follow-up. Data collection involves reviewing medical records and contacting healthcare providers. The collected information must be pertinent, accurate, and complete. Rules for abstracting are governed by organizations like the NPCR, NAACCR, and ACoS CoC. The data collected is utilized for survival, treatment, epidemiologic, facility planning, and quality-of-care analysis.
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Presentation Transcript
Objectives Define what a Cancer Registry abstract is Discuss what information (data) is collected Identify the organizations that govern abstracting rules Review how the collected data is used
Cancer Registry Abstract Patient information Time of diagnosis throughout life
Information Recorded Demographics Address Gender Race and ethnicity Marital status Insurance provider History and physical Chief complaints and symptoms
Information Recorded (continued) Diagnostic workup Scans and procedures Cancer staging and prognostic indicators Treatment Surgery Chemotherapy, Radiation therapy Immunotherapy Hormone therapy Follow-up
Collecting Information Review medical record(s) Contact physician offices Contact other cancer registrars
Data Collection Information must be: Pertinent Accurate Complete
Abstracting Rules State central cancer registry National Program of Cancer Registries (NPCR) North American Association of Central Cancer Registries (NAACCR) American College of Surgeons Commission on Cancer (ACoS CoC)
Data Use Survival analysis Treatment analysis Epidemiologic analysis Facility needs analysis and planning Quality-of-care issues
Summary Multiple organizations govern the rules of abstracting Abstract data must be complete and accurate Abstract data used in survival, treatment, and quality-of-care analysis
Thank You! NCRA Education Foundation www.ncraeducationfoundation.org NCRA www.ncra-usa.org
