Challenges Faced by Individuals with Retinitis Pigmentosa
Learn about the genetic disorder Retinitis Pigmentosa (RP) that affects the retina, leading to gradual vision loss. Explore typical vision symptoms, beyond-vision impacts, and associated challenges like social isolation, limited mobility, mental health issues, and health disparities. Discover how RP can affect an individual's daily life and well-being.
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Presentation Transcript
Challenges Encountered by Individuals with Retinitis Pigmentosa Walter Wu
What is Retinitis Pigmentosa? Genetic disorder affecting the retina. RP is an umbrella term for various degenerative forms. Gradual loss of vision from early childhood to mid-adulthood Affects 1 in 3,500 ~ 4,000 people worldwide. No cure Can lead to server vision loss or complete blindness
Typical Vision Symptoms Night blindness Peripheral vision loss (tunnel vision) Increased risk of tripping or falling. Can t see upcoming danger (cars/object) / social interactions (hand) Visual Acuity & Contrast sensitivity reduction 20/40 : low vision => difficulty reading 20/200 : legally blind => mobility issues 20/1600: ultra low vision => limited visual function Light perception Complete blindness Impaired Depth perception Difficulty Understanding speech Light/Dark Adaptation problems Color Vision Deficiency Medication with colors Increased Light Sensitivity Operatory Light at a dental clinic
Beyond Vision Lower socioeconomic status: Lowe education level Lowe income Higher employment rate (2 time higher) Social isolation Less social interactions Limited mobility Limited physical activity Mental health issues Depression & Anxiety Substace usage problem Health Disparities Less likely to get vaccinated
