Consumer-Controlled CIL Program Foundations
From the inception of nationwide grassroots consumer groups to the development of consumer-controlled Centers for Independent Living (CILs), this presentation delves into the history and significance of consumer control in the Independent Living movement. Learn how early CIL leaders pioneered consumer control, its relevance in current contexts, and why it remains a vital aspect in CIL operations.
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Presentation Transcript
>>Slide 1 >>Slide 1 Independent Living Research Utilization Independent Living Research Utilization 1
>>Slide 2 >>Slide 2 IL IL- -NET Biennial IL Virtual Institute NET Biennial IL Virtual Institute Consumer Control: Consumer Control: Our Foundation for the Past & Future Our Foundation for the Past & Future Presenters: Presenters: Judy Heumann Darrell Jones Lou Ann Kibbee Paula McElwee September 7, 2022 September 7, 2022 2
>>Slide 3 >>Slide 3 Welcome and Housekeeping Welcome and Housekeeping CART Captioning & ASL Interpreters are available. We will have audience Q&A today. You may submit a question through: Zoom Q&A Tab Phone callers only may press *9 on their keypad Submit questions anytime, but we will wait for our Q&A break to address them. Please fill out the evaluation after today s event. 3
>>Slide 4 >>Slide 4 Meet the Presenters Meet the Presenters Judy Heumann - co-founder of The Center for Independent Living, Berkeley; co-star, award winning documentary Crip Camp; advocate, author, producer. Judy s website: https://judithheumann.com/; podcast: The Heumann Perspective https://judithheumann.com/heumann- perspective/ Darrell Jones - Interim Executive Director at the National Council on Independent Living; former IL-NET Project Director; co-founder and 1st Director of Rochester Center for Independent Living (NY), one of the 1st Title VII funded CILs 4
>>Slide 5 >>Slide 5 Meet the Presenters, cont d. Meet the Presenters, cont d. Lou Ann Kibbee Systems Advocacy Manager, Southeast Kansas Independent Living (SKIL) Resource Center; activist in Western KS Association on Concerns of the Disabled which gave rise to the founding of LINK, Inc., one of the 1st Title VII funded CILs Paula McElwee - Director of Technical Assistance at the IL-NET Training and Technical Assistance Center for Independent Living at ILRU; co-founder and 1st Director of LINK, Inc., one of the 1st Title VII funded CILs 5
>>Slide 6 >>Slide 6 What You Will Learn What You Will Learn How the activism of nationwide grassroots consumer groups led to the creation of the national consumer-controlled CIL program from early CIL leaders who were there. How history can be used as a guide for implementing consumer control in Independent Living spaces. How the foundation of the Consumer Control movement applies to current situations. The importance of Consumer Control as a priority in CILs. 6
>>Slide 7 >>Slide 7 Consumer control Consumer control activism not compliance activism not compliance How a grassroots group in Kansas met transportation needs before we knew what a CIL was How New York activism grew into more Activism came first Berkeley and consumer control From local to national and the creation of national associations 7
>>Slide 8 >>Slide 8 Quote from John McKnight Quote from John McKnight Revolutions begin when people who are defined as problems achieve the power to redefine the problem. 8
>>Slide 9 >>Slide 9 Consumer control isn t compliance only Consumer control isn t compliance only Consumer control found its way into the Rehabilitation Act as a key component of IL philosophy because it is essential. There are boards of directors of CILs that don t really understand the importance of the philosophy. They just know that they are required to have 51% of their members be people with disabilities (and often completely ignore that they are to be people with significant disabilities). A couple of examples of missing the point. 9
>>Slide 10 >>Slide 10 Three waves of empowerment: Three waves of empowerment: 1. We follow the leader; we define ourselves according to what we were taught by our parents, teachers, clergy, political leaders, and other influential people in our communities. 2. We learn to follow ourselves. We claim our own identities, dreams, plans and goals and reject what doesn t fit us anymore. 3. We continue following ourselves but we learn how to make space for others to follow themselves. In a nutshell, that s what CILs, the IL Program, and disability rights and disability justice can offer the world. Everyone can be a leader if we make space for them to do so. 10
>>Slide 11 >>Slide 11 Questions & Discussion Questions & Discussion 11
>>Slide 12 >>Slide 12 Break Break Return in 1 hour Return in 1 hour 12
>>Slide 13 >>Slide 13 How do you create an environment that How do you create an environment that encourages leadership? encourages leadership? 13
>>Slide 14 >>Slide 14 How do you attract leaders to all positions How do you attract leaders to all positions at your center at your center board, staff, management? board, staff, management? 14
>>Slide 15 >>Slide 15 How do you recognize the leadership How do you recognize the leadership potential in those around you? potential in those around you? 15
>>Slide 16 >>Slide 16 Evaluation Survey Evaluation Survey We appreciate your feedback! Look for the link in the Chat for your convenience as we approach the end of the presentation. Survey link goes here 16
>>Slide 17 >>Slide 17 What practices encourage the development What practices encourage the development of leadership in young people? of leadership in young people? 17
>>Slide 18 >>Slide 18 How can you attract leaders from How can you attract leaders from diverse communities? diverse communities? 18
>>Slide 19 >>Slide 19 How can you encourage disabled leaders How can you encourage disabled leaders to stretch their leadership beyond the to stretch their leadership beyond the CIL and the IL community? CIL and the IL community? 19
>>Slide 20 >>Slide 20 Questions & Discussion Questions & Discussion 20
>>Slide 21 >>Slide 21 Final Questions and Evaluation Survey Final Questions and Evaluation Survey Any final questions? Directly following the webinar, you will see a short evaluation survey to complete on your screen. We appreciate your feedback! Survey link goes here 21
>>Slide 22 >>Slide 22 Contact your presenters Contact your presenters Judy Heumann judithheumann1@gmail.com Darrell Jones Darrell@ncil.org Lou Ann Kibbee louannk@skilonline.com Paula McElwee paulamcelwee.ilru@gmail.com 559-25-3082 22
>> Slide 23 >> Slide 23 IL IL- -NET Attribution NET Attribution The IL-NET is supported by grant numbers 90ILTA0002 and 90ISTA0002 from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy. 23
