COVID and Disability Data Collection Activities in Finland
"Explore the COVID and disability data collection activities in Finland, focusing on the impact of the pandemic on everyday life, health, and wellbeing of individuals with disabilities. Discover the research questions, data collection methods, and stakeholder involvement in this important project."
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COVID and Disability Data Collection Activities Finland P ivi Sainio and Seppo Koskinen 3/20/2025 Finnish Institute for Health and Welfare
Finland: - Total population 5,5 million - Capital Helsinki - The surface area is 338,432 km - The neighbouring countries are Russia (east), Norway (north), Sweden (west) and Estonia (south) - Official languages: Finnish, Swedish Source: https://toolbox.finland.fi/seasons-destinations/finland-on-the-world-map/ 2 3/20/2025
Coronavirus in Finland, Sept 21th - - - - - Reported cases: In hospital care: In intensive care: Deaths: Cases / 100 000 9046 16 3 339 160 Firstname Lastname 3 3/20/2025
Population surveys: disability and the impact of COVID Four data collections between Autumn 2020-Spring 2021: 1. Adult population, cross-sectional study, n=60 000 2. Adult population, follow-up study, n=10 000 3. Children and youth 10-20 years, cross-sectional study, n 388 000 4. People with foreign background, 18-64 y, follow-up study, n=7 800 Samples from the Population register, representing Finnish population / foreign born population Comprehensive contents on health, wellbeing, services, etc.+questions on COVID-19 impacts on everyday life Disability questions based on Washington Group (modified): at least seeing, hearing, mobility and cognition Firstname Lastname 4 3/20/2025
Research questions, examples Disaggregation by disability 1. What is the impact of the COVID-19-related restrictions on everyday life, health and wellbeing, services etc. 2. Have the differences between people with and without disabilities become larger or smaller? Population level changes (comparison with data collected before the pandemic) 3. What are the individual level changes among people with disabilities compared to people without disabilities? 4. Intersectionality: e.g. foreign born people with disabilities Firstname Lastname 5 3/20/2025
Data to be collected from people with disabilities (PwD) and other stakeholders As a part of a development project, information on the impact of COVID- 19 is to be gathered from PwD, service producers and local authorities Using the findings from the interviews and those based on population surveys, different stakeholders (PwD, DPOs, service providers, authorities of the municipalities, THL, etc.) will work together To develop instructions, plans and operational models for use in municipalities To produce accessible information for PwD The project aims to support the functioning of PwD in the future crises so that their needs and rights will be respected Firstname Lastname 6 3/20/2025
Thank you! Photo by Suvi Sainio: the lake of Saimaa, Eastern Finland Firstname Lastname 7 3/20/2025
