Enhanced Support for Neuro-Oncology Patients
This initiative, led by Emil Cano in Neuro-Oncology CNS, focuses on providing specialized care for low-grade gliomas and skull base patients. The program offers psychological, emotional, and holistic support, alongside symptom management and educational resources. By acting as a single point of contact, patients receive ongoing assistance and improved quality of life. The team's collaborative approach and commitment to tailored care aim to alleviate patient anxieties and promote better outcomes.
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Presentation Transcript
Emil Cano Neuro-Oncology CNS
Established February 2023 after a recommendation form the Tessa Jowell Brain Cancer Mission. Funded by the SWAG Cancer Alliance for 1 year; funding for 2ndyear in progress Recognized a need for psychological support in this patient group. 154 patients as of 12th of December 2023. Cover low-grade gliomas & most of the skull base patients. My training so far (LGG conference/study day, level 2 psychological skills, difficult conversations)
Meet & introduce myself to new patients Provides advice, support & information (SACT, radiotherapy, active surveillance) Patient education in managing treatment side effects & symptom advice Emotional & psychological support for patients & their kin Holistic needs assessment (HNA) I am able to signpost (financial, psychology, work/schooling issues, counselling, provide emergency contact details) MDT & link to services outside of UHBW. Work collaboratively with the Macmillan therapy team (OT/physio) & the prehab team in NBT
Meningioma 70% Craniopharyngioma & chondrosarcoma 18.6% Pituitary Adenoma 8.6% Ganglioma & Paraganglioma 2.8%
Oligodendroglio ma (WHO grade 1 & 2) 45% Astrocytoma 31% Ependymoma 9.6% Others 14.4%
Skull base 62.5% Parenchyma & Spine 37.5%
Single point of contact for low-grade & skull base patients (smoother pathway for the patients). Enhanced psychological & emotional support given to patients & their families. Symptom management & seizure control. Increased resilience within the Neuro-oncology CNS team. Enhanced cross-cover. Patients verbalized relief knowing they have a named-CNS ongoing QOL assessments (pre & post treatment).
We recognize the complexities of this patient group & their increased needs. Specialist input aims to provide evidence-based care & reduce anxieties for patients. The multi-disciplinary team approach promotes individualized patient care. CNS role facilitates the patient's journey as the single point of contact going forward which ensures ongoing and comprehensive support. Funding from the Cancer Alliance for a substantive post would continue to support quality outcomes for this patient group.
