
European Federation of Neurological Associations (EFNA): Mission and Partnerships
EFNA, the European Federation of Neurological Associations, aims to improve the quality of life for people living with neurological disorders in Europe. Through advocacy and partnerships with organizations like the European Brain Council and European Patients Forum, EFNA works to influence policymakers, promote transparency, and ensure sustainable practices. Learn more about EFNA's mission, values, and partnerships in the field of neurology.
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Presentation Transcript
AN INTRODUCTION TO EFNA An introduction to the Organisation, its mission and objectives. EFNA // 2017
INTRODUCTION The European Federation of Neurological Associations (EFNA) brings together European umbrella organisations of neurological patient advocacy groups, to work with other associations in the field of neurology, including the European Academy of Neurology (EAN), in what has been termed a Partnership for Progress . Our Vision A better quality of life for people in Europe living with a neurological disorder.
To influence policy makers and legislators in Europe (and particularly in the European Union) to prioritise resource allocation to reduce the burden for people living with a neurological disorder. To communicate with our members to achieve positive change and to ensure that our actions both represent and provide added value to their own concerns and activities. To establish strong partnerships and alliances with relevant stakeholders in the scientific, clinical, political and corporate arenas to help us to reach our goals partnership for progress. Our Mission
Trustworthiness and transparency we will be open, honest and ethical in all we do. Respect and democracy we respect one another s differences and contributions. Sustainability we will make best use of our resources to bring about changes that produce permanent benefits for our members and will plan our activities to ensure EFNA s future. Our Values
Health at work is not just a socio-economic issue. In order to avail of the opportunities to access employment that the European Social Pillar could provide, people living with brain, mind and pain disorders need early and accurate diagnosis as well as appropriate treatment and management. DONNA WALSH, EFNA EXECUTIVE DIRECTOR
PARTNERS The European Federation of Neurological Associations [EFNA] works with multiple partners from various stakeholder groupings across Europe to advance our vision and mission. Below you will find a list of some of the groups/partnerships in which we are actively involved. European Alliance for Access to Safe Medicines [EAASM] Europa-Bio Patients Bio-Forum European Brain Council [EBC] European Patients Forum [EPF] European Academy of Neurology (EAN) Patients and Consumer Working Party at the European Medicines Agency [PCWP] Think-Tank at the European Federation for Pharmaceutical Industry Associations European Society of Radiology Patient Advisory Group [ESR-PAG] Medicines for Europe Societal Impact of Pain Platform
STRATEGIC PILLARS OF EFNAS ACTIVITIES:e Title Advocacy Awareness Empowerment Engagement
EU POLICY:e Title Heather Clarke, EU Senior Policy Officer euaffairs@efna.net
COMMUNICATIONS:e Title Elizabeth Cunningham, Communications and Events Coordinator communications@efna.net
THANK YOU FOR LISTENING We hope you enjoyed this presentation. w w w. e f n a . n e t @ E U n e u ro l o g y