GBS-CIDP Foundation: International Club Membership
The GBS-CIDP Foundation International welcomes you to a select group dedicated to supporting individuals with Guillain-Barré Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Learn how to start your own chapter, engage with local hospitals, and organize meetings to raise awareness and provide support for patients and their families. Get involved with neuro units, arrange presentations, and plan follow-up initiatives for meaningful impact in the community.
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Presentation Transcript
GBS-CIDP Foundation International Welcome to the club! (Courtesy of Bill Ansley) You now belong to a select group
GBS-CIDP Foundation International How Did I Start? Completed my Charter Made a plan Tried not to be afraid Was there already a local chapter Utilized my regional director Utilized the foundation s support
GBS-CIDP Foundation International Started with local hospitals
GBS-CIDP Foundation International Made a Call ! Children s Hosp s University Hosp s Hosp Chains Rehab Centers
GBS-CIDP Foundation International Neuro Units Secretaries Admin Asst Social Workers PHYS Therapists OC Therapists
GBS-CIDP Foundation International Arrange a Meeting Get - on their calendar Be - knowledgeable Sell - yourself - Creative - with your presentation Involve - everyone into the discussion Display - foundation handouts Plan - a follow-up
GBS-CIDP Foundation International What s Next ? https://encrypted-tbn3.gstatic.com/images?q=tbn:ANd9GcQSH1oO1URp42M_07f3HwBLaatwzgd8ANVOiPAwmiHhP1QLxShxBcQp9mEn
GBS-CIDP Foundation International https://encrypted-tbn3.gstatic.com/images?q=tbn:ANd9GcSxbZI16cIe_H7dTyfd7HwRJRJGUqHyRIb8JTVuKQwoMFlFK_hNpi9OVQ Schedule a Chapter Meeting !
GBS-CIDP Foundation International Chapter Meeting Work with regional director/binder Try to schedule spring & fall, 2 months out Reserve room for 4 hours (1-2-1) Venue (libraries non-profit, equipment) Accessible Guest speaker News media (TV, radio, newspaper)
GBS-CIDP Foundation International Chapter Meeting Chapter meeting box Create a flyer, distribute Guest speaker gifts Thank You cards Goodies
GBS-CIDP Foundation International Day of Chapter Meeting Get there early make sure things work Introduce yourself, round robin Introduce the Foundation Turn over to guest speaker(s) Q/A session Distribute/collect evaluations Great data for future meetings
GBS-CIDP Foundation International YOU are the face of the foundation
GBS-CIDP Foundation International My 4 Bee s B professional B compassionate B a great listener B a friend https://encrypted-tbn2.gstatic.com/images?q=tbn:ANd9GcRD7nzwe4wqowRm90fZGhUM9Dn0_5Wn2kWc57A2KHTmwnuOfBIweTdiYQ
GBS-CIDP Foundation International https://encrypted-tbn0.gstatic.com/images?q=tbn:ANd9GcQo6NrCxpV_3fj8tW-p8vohjJKOfQW-uuAnzpaN55xG6p7qrZ7gZl9BpGY Your Turn
GBS-CIDP Foundation International https://encrypted-tbn0.gstatic.com/images?q=tbn:ANd9GcQXpcM_i3JAKdRK8FWHyXAtXc3eHIdqbnKZSMSs5zl5RzzujSkZqSLI6Q FOR VOLUNTEERING FOR VOLUNTEERING! !
