Geographical Spread of Pain Programmes in Northern Ireland
This information showcases the geographical spread of pain programmes across Northern Ireland, including various locations like Belfast, Derry, Lisnaskea, Ardoyne, and more. The programmes aim to provide support and resources for individuals dealing with chronic pain conditions such as arthritis and fibromyalgia. The template outlines the structure and objectives of the programme, emphasizing the importance of personal development, pain self-management, and gentle movement. Monitoring outcomes highlight the success of the programmes in terms of participant retention, attendance, and improvements in pain self-efficacy scores.
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Presentation Transcript
HEALTHY LIVING WITH CHRONIC PAIN Tony Doherty HLC Alliance Dr Christine McMaster PHA
BACKGROUND 450000 in NI with chronic or persistent pain Opportunity to introduce a new dimension to tackling chronic pain at neighbourhood level Non recurrent funding 2017 19 PHA/ HSCB Training 2 x Events Pain Toolkit / Establishing a neighbourhood-based pain support programme 2017 Connection to NI Pain Forum-Evaluation questions x 8
PAIN PROGRAMMESGEOGRAPHICAL SPREAD Belfast Heart Western Bogside/Brandywell Old Library Trust Derry Oak - Lisnaskea Castledearg Ardoyne Shankill EBCDA Top of the Rock Southern The Verve HLC Craigavon/Portadown/ Lurgan South Eastern Resurgam - Lisburn Ards Peninsula
PROGRAMME TEMPLATE Target numbers: 20 participants Target delivery: 12 week programme 1 session per week Facilitation: Key facilitator in each centre as point of contact with experience in delivery of personal development programmes plus Mental Health First Aid or equivalent Personal Development Peer Led Learning Gentle Movement Pain Self Management
MONITORING OUTCOMES What information did we want to gather? -Range of pain-related conditions -Male /female -Age -PSEQ+2 and PHQ4 Baseline and final evaluation -Qualitative feedback from participants
OUTCOMES Conditions 62.4% of participants had a form of arthritis 31% had fibromyalgia Outputs 92% retention of participants for 12 week programme 90% of participants attended a minimum of 10 out of 12 sessions
OUTCOMES Week 1 92% of participants had a PSEQ+2 score (Pain Self Efficacy) of under 8 with lowest scores between 2-5 Week 12 Over 90% of participants increased their score by over 4 points 100% of participants increased their score by a minimum of 2 points
CASE STUDY 75 year old male Fibromyalgia / Persistent chronic pain Lived with chronic pain for three years before being diagnosed with Fibromyalgia A variety of pain medication and Opioids prescribed Medical professionals informed him he was on maximum medication possible and that no more could be done What he said: Benefits have been meeting other people in my position and learning how to manage pain apart from opioids. Pain self-management is a new concept for me; breathing exercises and meditation have been great.
WHAT THEY SAID Each week I was learning how to take steps to move forward, rather than being stuck in my condition and in pain. Female 47 My first thought was that it (the support programme) was going to take my pain away. Then I realised it's not going to go away but I that can manage it much better. Female 65 Even though my pain levels haven t decreased in any way I have learnt new techniques to cope giving me a better quality of life. Male 75 I was in utter shock at the group when we talked about tablets and how we can become dependent on them (I myself was going that way!) I ve learned that they don t control me. I control them! Female 41 A big barrier that I broke down was that I wasn t alone, and that medication couldn t fix it all. Male 60 I have developed a very positive attitude to my health. My consultant was astonished at how well I was doing since she had last seen me two years ago. Female 61
LEARNING Delivery template 80% prescriptive 20% flexibility locally Training & quality assurance of delivery Need better connections with primary and secondary care especially pain clinics Tie to social prescribing and MDTs in primary care especially first contact physiotherapists Promising results but need for further testing of model
CURRENT UPDATE Opportunities 2019-20 Pain Programmes in 20 HLCs commenced in September 19 and more planned for January 20 Pain Support Steering Group of HLC Alliance, PHA, HSCB and GPs with advice from QUB Further training for staff in opioid education in December 2019 Greater emphasis on harmful use of prescribed medication
