How International, European, and National Campaigns Collaborate
A look at the alignment of international, European, and national campaigns to address rare diseases, supported by UN resolutions and advocating for holistic care, treatments, and research.
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Presentation Transcript
How International, European and National Campaigns Work Together CNA Hot Topics call 7 October 2021
A UNGA resolution supports and affirms rare diseases as a priority. The French EU Council Presidency and the following Trio, and places the prospect of a European Action Plan for Rare Diseases within the framework of the European and international (UN) 2030 Agenda to leave no one behind.... via national and regional policies and actions that all work towards the same measurable goals. 2
Advocacy roadmap SDGs UN Resolution for PLWRD recommendations and targets Europe s Action Plan for Rare Diseases National Plans & Strategies 3 goals (linked to SDGs) Treatments Develop. & Access Social & Disability Data & Digital Access to Care Research Diagnosis Rare Cancers 3
INTERNATIONAL Resolution INTERNATIONAL with a European platform Awareness PUBLIC AT LARGE Human rights, holistic care and inclusion UNITED NATIONS EUROPEAN Action Plan Across all Sectors European Commission Europe s Beating the Cancer Plan EUROPEAN Treatments OMP Regulation Pharma legislation EUROPEAN Holistic care EUROPEAN Patient Data 4
Key Background work Advocacy actions Public facing Where we need your help week 11/10 18/10 25/10 1/11 8/11 15/11 22/11 29/11 6/12 13/12 20/12 To Feb #30 milli on Prep outputs case study support Final push for reasons Contact MS linked to UN resolution passing Link to RDD Official 3rdcommittee approval UN Informal consultations Approval in General Assembly -press NBS Campaign for signatures SL Presidency technical meeting 5
