
Importance of Tribal Data Sovereignty and Research Principles
Explore the significance of tribal data sovereignty and research principles in ensuring Indigenous communities have control over their data and benefit from research initiatives. Learn about the challenges, initiatives, and advancements in tribal data practices. Discover why data sovereignty is crucial for tribal nations and how they are driving their own research and investments towards self-determination.
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Presentation Transcript
Getting to Data Sovereignty Dr. Malia Villegas November 16, 2019
CONTEXT: Tribal Research Sovereignty Tribal nations have sovereignty over research that happens on their lands and with their citizens Urban populations Emerged out of a history of community violation genealogy Arizona State University Diabetes data is used for secondary study on schizophrenia, incest, and genetic origins Center for Research on the Acts of Man Alcohol Plagues Eskimos Johns Hopkins Hospital HeLa cells US Public Health Service Syphilis study Preventing violation vs. advancing self-determination
Tribal Research Principles Two-Sided Coin: Protect & Benefit Research is not culturally neutral Research must benefit Native people Three pillars of Governance, Culture, Trust
Why is Data Sovereignty Important? 2020 Decennial Census Interdisciplinary Solutions Tribal evaluation Cyber attacks Tribes driving their own research & investments
Advancing the Work Tribal Public Health Database (Reed weaving, MMA, prisoner code) Survey of Tribal Data Practices KidsCount Native Supplement Research Futures Game