Innovative Strategies for Coping with Retinal Diseases at RI Congress - Reykjavik 2022
Explore cutting-edge approaches discussed at RI Congress in Reykjavik, focusing on preparing for the future and enhancing quality of life for patients with retinal diseases. Discover Checkheft, a valuable resource offering coping strategies and insights to protect and regain daily living skills, developed through collaborative efforts led by professionals in the field.
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Presentation Transcript
RI Congress, Reykjavik, 09.06.2022 Dr. Frank Brunsmann Checkheft: Preparing for tomorrow coping, today
RI Congress, Reykjavik, 09.06.2022 We as RD patients: What determines our future quality of life?
RI Congress, Reykjavik, 09.06.2022 Accurate diagnosis (Availability of an) effective treatment (Support of) disease coping
RI Congress, Reykjavik, 09.06.2022 How to facilitate and improve coping? Counselling by ophthalmologist awareness, knowledge and activity of patient professional and voluntary support
RI Congress, Reykjavik, 09.06.2022 Checkheft What is it? A collection of well-tried coping strategies for patients with retinal diseases Paper and electronic version Language: German
RI Congress, Reykjavik, 09.06.2022 Aims of Checkheft checking for possible weaknesses protecting and regaining daily living skills Being ready for whatever future brings
RI Congress, Reykjavik, 09.06.2022 Creation of Checkheft (1) Project of University Eye Clinic in M nster, Germany Project Leader: Prof. Dr. med. Nicole Eter In cooperation with PRO RETINA Deutschland e.V. Sponsored by Robert Bosch Stiftung
RI Congress, Reykjavik, 09.06.2022 Creation of Checkheft (2) Preliminary set of 100 daily living skills on risk 4 Workshops 20 experienced active members of PRO RETINA
RI Congress, Reykjavik, 09.06.2022 Descriptions on 91 daily living skills consider: Coping strategies Limits of self education Contribution of voluntary and professional support
RI Congress, Reykjavik, 09.06.2022 Ten Areas of Coping Strategies 1. Mobility 2. Education, Job 3. Clothes, personal hygiene, health 4. Money and Shopping 5. Nutrition 6. Media and electronic communication 7. Self-management 8. Housekeeping 9. Social competences 10. Leisure time
RI Congress, Reykjavik, 09.06.2022 Example Area Money and Shoping Identifying banknotes and coins Keeping a bank account To draw money from a cashpoint Paying with a debit card Buying food Buying clothes Buying online
RI Congress, Reykjavik, 09.06.2022 Take home messages Supporting coping and quality of life as relevant end point should become an essential part of the strategy for medical care and research a structured patient information such as the Checkheft has the potential to support coping it can be used in ophthalmological care and peer counselling
RI Congress, Reykjavik, 09.06.2022 Thank you for your attention!
