Last Years of Life: Service User Involvement
The impact of service user involvement in end-of-life care, as shared by Sarah Burnard, Community Engagement Manager at St. Joseph's Hospice. Discover key themes, feedback influence, and upcoming events to promote awareness and support for better care strategies.
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Presentation Transcript
Last Years of Life: Service User Involvement Sarah Burnard, Community Engagement Manager, St Joseph s Hospice
Total number of people engaged with 181: Carers and Patients
Key Themes Information: We need the right information at the right time Integrated working: Services provided feel disjointed Immediacy of care: Services need to be fast and immediately responsive Support for carers: Carer s quality of life is poor Non-traditional services: Peer to peer support is important Specialist nurses: The nurses had knowledge and compassion Paid Carers: There is a lack of training and empathy GP Services: The relationship with your GP is very important District Nurses: Seeing different nurses can lead to inconsistent care Hospital Care: Compassion and empathy is important
What has happened so far: Feedback has influenced the Last Years of Life Care Strategy and the Integrated Care Strategy Out of Hours / 111 Service Dying Matters events annually Member of group sits on CCG Last Years of Life Steering group A District Nursing Service User Review A directory for Last Years of Life Care services Islington Bereavement Service Islington Bereavement Service
Dying Matters: You Only Die Once This year Dying Matters Awareness week will take place 12th-18thMay. This year s theme is You only die once . There will be an event run by Islington CCG. Date: Weds 18 Date: Weds 18th Time: 10am Time: 10am- -4pm thMay 2015 May 2015 4pm Venue: Islington Assembly Hall , Upper Street, London, N1 2UD Venue: Islington Assembly Hall , Upper Street, London, N1 2UD The event will include workshops covering topics such as will writing, advice about affordable funerals and and support for people with long term conditons . There will also be information stalls from local service providers. FREE complementary therapy taster sessions FREE lunch & refreshments Everyone welcome to attend this FREE event! For further information please contact Rachael Yearwood on 0208 525 3140 or email r.yearwood@STJH.org.uk
