Measuring What Matters in Primary Care Research

Measuring What Matters in Primary Care Research
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This study explores the development and testing of core primary care items grounded in the experience of patients, clinicians, and employers. Through crowd-sourcing surveys and stakeholder meetings, the research identified a concise set of patient-reported measures to assess primary care quality. The resulting 11-item Person-Centered Primary Care Measure was found to strongly assess a single factor with negligible redundancy, working across pediatric and adult populations both asynchronously and at the point of care.

  • Primary Care
  • Research
  • Patient-Centered
  • Quality Assessment
  • Stakeholder Engagement

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  1. Measuring What Matters in and from Primary Care Rebecca S Etz,1,4Kurt C Stange,1,2,5Stephen J Zyzanski,1,5 Martha M Gonzalez,1,4Jonathan P O Neal,1,4Sarah R Reves,1,4 and Robert L Phillips3,6 1 The Larry A. Green Center; 2The Center for Community Health Integration; 3The Center for Professionalism and Value in Health Care; 4Virginia Commonwealth University; 5Case Western Reserve University; 6The American Board of Family Medicine This work supported by ABFM Foundation, AHRQ, NAPCRG, FMAHealth and VCU.

  2. The Research Question To develop and test the psychometric properties of a potentially meaningful and parsimonious set of core primary care items, grounded in the experience of patients, primary care clinicians, and employers.

  3. Research Design and Method Stage 1 Crowd-Sourcing Surveys Fielded among patients (412), clinicians (525), employers (85) Goal: Identify stakeholder definitions of quality Stage 2 Starfield Summit III 2 day meeting of diverse primary care stakeholders Goal: Revise & refine crowd-sourced quality indicator areas Goal: Create set of items able to meaningfully assess primary care Stage 3 Assess properties of patient-report items Field potential set of patient reported items asynchronously and at point of care Test reliability and construct validity using factor, goodness of fit, & Rasch model analyses

  4. What the Research Found Stage 1 Stakeholders had unique interests Clinicians say: current measures miss 42% of what s important & what they do that s important is not recognized or supported Patients agree: 72% overlap with clinicians & highlight importance of personalized attention Stage 2 11 domains that integrate stakeholders and research Identified a concise set of patient-reported measures: 11 items total Measure integrates best stakeholder voices with best practice research Stage 3 Assess 11-item Person-Centered Primary Care Measure All 11 items strongly assess a single factor with negligible redundancy Works in pediatric and adult populations, asynchronously or at point of care

  5. What this means for Clinical Practice The 11-item Person-Centered Primary Care Measure* Is a person centered patient assessment of primary care quality Provides empirical evidence that broad scope of primary care is conceptually coherent Can be used effectively in a diversity of primary care settings Allows for assessment of primary care while significantly reducing measure burden Can be used to determine which primary care aspects most impact population health Can be used to reduce physician burnout and support QI and high quality care * Etz RS, Zyzanski SJ, Gonzalez MM, Reves SR, O'Neal JP, Stange KC. A new comprehensive measure of high-value aspects of primary care. Ann Fam Med 2019; (under review).

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