National Cancer Patient Experience Results 2018: Insights on Lung Cancer Clinical Advisory Group

National Cancer Patient Experience Results (NCPES) 2018 Lung Cancer Clinical Advisory Group Tuesday 19thNovember,2019 Belinda Ockrim, LCN

2018 NCPES Any adult ( >16) with a cancer diagnosis and had an Inpatient or day case associated care episode during 01/04/18 30/06/18 National response rate was 64% (2017 - 63%) Results published September 2019 You can check any trust s quantitative results at www.ncpes.co.uk SWAG s lung responses : 2018 Lung responses UHBristol 95 North Bristol 12 Glos / Chelt 70 Taunton 32 Yeovil 13 Weston 1 Bath 14

National Results and considerations UKCONS have also published their analysis of the national results and whilst there have been some serious improvements in overall care, access to CNS support and being involved in decision making there has been a deterioration in waiting times for first appointment , diagnostics and primary care support. Men rated their experience higher than women as did patients who recorded themselves as white Whilst some of this broader thinking may not feel pertinent to us and ethnicity data not shared with Trusts but worth considering when designing services, processes and patient information. I have included in this presentation SWAG generic responses and some lung specific answers for answers with 21 + answers These were chosen as an indicator of services and perhaps the checks on the emergence of the LWBC ( personalised care ) effects.

Cancer Patient Experience Survey (CPES) dashboard as developed by PHE and NHSe SWAG generic results SWAG generic results SWAG Royal Marsden 2018 Answers to the following questions expressed as percentages other than the last one which is on a 0-10 scale SWAG results compared to national and the RM National 2018 2018 79 79 79 Felt involved as much as they wanted to be in decisions about care and treatment 90 91 95 Given the name of the CNS who would support them through their treatment 87 85 83 Quite or very easy to contact their CNS 91 89 94 Always treated with respect and dignity 95 94 97 Hospital staff told them who to contact if worried about condition/ treatment after leaving hospital 62 59 56 Felt GPs and nurses at GP practice did everything they could to support 8.9/10 8.8/10 9.0/10 Asked to rate their care on a scale of 0 ( very poor) -10 ( very good)

Lung results against national and Marsden National Average Royal Marsden Q Question and answer expressed in a % Glos/Chelt Taunton UHB Pt definitely involved in decisions about care and treatment 16 79 82 82 81 81 20 Given info about support groups 86 92 91 90 82 Given info about impact on day to day activities 21 82 84 83 81 Enough privacy when discussing condition and treatment 34 85 80 96 89

Lung Results continued National Average Royal Marsden Q % Glos/Chelt Taunton UHBristol Possible side effects explained in an understandable way 13 74 72.2 83.3 79.6 77 Pt told about side effects that could affect them in the future 15 56 53.1 64.3 60.5 63 Understandable info about whether radiotherapy was working 45 56 62.5 54 All info needed about chemo treatment 47 84 84.9 88 92.9 86 Understandable info about whether chemo was working 48 67 77.6 68.2 65.9 70

Lung Results continued National Average % Q Glos/Chelt Taunton UHBristol Royal Marsden 17 Given the name of a CNS 93 90 96 98 96 18 Found it easy to contact CNS 87 92 75 90 85 GP given enough info about pt s condition / treatment 52 94 91 96 96 98 Have you been given a care plan? 55 31 30 35 25 Has anyone discussed / asked if you would like to take part in research? 58 35 37 39 46 73

Thoughts Firstly remember whilst there is always room for improvement but these are a great set of results ! May need to review early information and care planning but don t rush off and overhaul as these results will likely change with the development of early HNAs and WBEs such as first steps suggest we continue to review in SWAG as the LWBC implementation progresses Remember to look at your comments and work through in your MDTs and where possible involve patient focus groups

Questions