Opt-Out Implementation Data Flow Map (MSDS Approach England Only) Main Annual Report
This document outlines the data flow process for the National Maternity and Perinatal Audit (NMPA) in England, detailing how linked datasets are accessed, analyzed, and reported on for benchmarking and audit purposes. The flow includes anonymized and aggregated data, with stringent measures in place to protect individual privacy and confidentiality. Various datasets, controllers, and processors are involved in ensuring the secure handling of maternal and child health information. The diagram illustrates the flow of identifiable, pseudonymized, and anonymized data, highlighting the legal bases and data categories involved.
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Opt-out implementation data flow map (MSDS approach England only) Main Annual Report Anonymised and aggregated Small numbers suppressed NMPA Team Secure N3 Server Host: RedCentric Accessible only to NMPA team, including Data Managers NMPA data manager/statistician to request linked Maternity Services Dataset (MSDS) from NHS Digital (NHSD). Audit benchmarking website Anonymised and aggregated Small numbers suppressed NMPA project team access pseudonymised data (NMPA ID only) for analysis At the point of requesting this linked dataset, the NMPA will reinforce that no data from those who have opted-out should be included Topic-specific sprint audit reports Anonymised and aggregated Small numbers suppressed NHS Digital CQC metrics Anonymised and aggregated Small numbers suppressed NHS Digital link English ONS register of live births and stillbirths with ONS mortality register, PDS birth notification dataset, MSDS, MIS, NNRD, HES and English mental health datasets (controllers of linked data: ONS & NHS Digital), Peer-reviewed articles, papers & PhD/Masters theses Anonymised and aggregated Small numbers suppressed Pseudonymised data securely transferred via SFTP DATA FLOW Blue = Identifiable data Green = Pseudonymised data Red = Anonymised and aggregated Third party access to pseudonymised NMPA data Third parties apply to HQIP for access via DARG
National Maternity and Perinatal Audit (NMPA) Data Flow Diagram 2/12/2020 IGU - Version 6.1 Datasets Data linkage For linked data: Data controller: HQIP/NHS E Data processor: NMPA NMPA Data controller: HQIP/NHS E Data processor: NMPA Outputs Anonymised and aggregated NHS Digital link English PDS Birth Notification dataset + HES APC Cohort with Civil Registration Data (mothers and babies) Pseudonymised identifiable data includes baby DOB only Birth Register, Death Register, Birth Notification data set Source: NHS Digital Annual cohort Main Annual Report Anonymised and aggregated Small numbers suppressed English cohort to be based on PDS Birth Notification data for England and HES specification provided by the NMPA HES APC Cohort NHS Digital link English PDS Birth Notification dataset + HES APC Cohort with HES APC data (mothers and babies) NMPA project team access pseudonymised data for analysis HES Data Controller: NHS Digital Audit benchmarking website Anonymised and aggregated Small numbers suppressed Maternity Services Data Set (MSDS) Controller: NHS Digital NHS Digital link English PDS Birth Notification dataset + HES APC Cohort with MSDS (mothers and babies) English mental health datasets (MHSDS, MHMDS) Controller: NHS Digital Topic-specific sprint audit reports Anonymised and aggregated Small numbers suppressed NHS Digital link English PDS Birth Notification dataset + HES APC Cohort with mental health data sets (mothers only) CQC metrics Anonymised and aggregated Small numbers suppressed Quarterly updates NHS Digital to derive cohort from HES APC data (mothers and babies) Peer-reviewed articles, papers & PhD/Masters theses Anonymised and aggregated Small numbers suppressed English cohort to be based on HES specification provided by the NMPA HES APC Cohort NHS Digital link HES APC Cohort with Civil Registration data (mothers and babies) Third party access to pseudonymised NMPA data Pseudonymised Third parties apply to HQIP for access via DARG DATASET CATEGORIES: Orange = Maternity data Green = Use for case ascertainment Dark Blue = Use for data quality validation and longitudinal analysis Purple = Sprint audit data DATA FLOW Blue = Identifiable data (Section 251 approval) Light Green = De-identified data (Covered by Data Protection Act schedule 2 condition 6(1) & schedule 3 condition 8) Red = Anonymised and aggregated Legal bases for all data flows: GDPR Article 6(1)(e), 9(2)(H), 9(2)(I)
Wales DATA FLOW Blue = Identifiable data Green = Pseudonymised data Red = Anonymised and aggregated NHS Digital Main Annual Report Anonymised and aggregated Small numbers suppressed NMPA Team Secure N3 Server Host: RedCentric Accessible only to NMPA team NHS Digital link Welsh ONS register of live births and stillbirths with ONS mortality register, PDS birth notification dataset, MIds, NCCHD and PEDW (controllers of linked data: ONS, NHS Digital & NWIS) Identifiers securely transferred via SFTP Audit benchmarking website Anonymised and aggregated Small numbers suppressed NMPA project team access pseudonymised data (NMPA ID only) for analysis NWIS Topic-specific sprint audit reports Anonymised and aggregated Small numbers suppressed NWIS separate patient identifiers (Mother s & baby s NHS number, mother s and baby s date of birth, baby s gender, mother s postcode) from pseudonymised data in MIds, NCCHD and PEDW data NWIS link NCCHD with MIds and PEDW (controller of linked data: NWIS) Pseudonymised data securely transferred via SFTP Peer-reviewed articles, papers & PhD/Masters theses Anonymised and aggregated Small numbers suppressed Data controller Type of extract received Dataset(s) Country Purpose Office for National Statistics (ONS) live birth, stillbirth and mortality registers England & Wales ONS Pseudonymised Case ascertainment Personal Demographics Service (PDS) birth notification dataset England & Wales NHS Digital Pseudonymised Linkage, validation National Community Child Health Database (NCCHD) Wales NWIS Pseudonymised Maternity data Maternity Indicators data set (MIds) Wales NWIS Pseudonymised Maternity data Patient Episode Database for Wales (PEDW) Wales NWIS Pseudonymised Longitudinal analysis, validation
Scotland Main Annual Report Anonymised and aggregated Small numbers suppressed NMPA Data Manager Secure N3 Server Host: RedCentric Accessible only by NMPA Data Managers NMPA Team Secure N3 Server Host: RedCentric Accessible only to NMPA team NMPA data managers receive NNRD from NDAU, and separate patient identifiers (Mother s & baby s NHS number, mother s and baby s date of birth, baby s gender, mother s postcode) from pseudonymised data in NNRD data Pseudonymised data made available to rest of NMPA team Audit benchmarking website Anonymised and aggregated Small numbers suppressed NMPA project team access pseudonymised data (NMPA ID only) for analysis Topic-specific sprint audit reports Anonymised and aggregated Small numbers suppressed Identifiers securely transferred via SFTP ISD Pseudonymised data securely transferred via SFTP ISD link NRS with SMR-02, SBR, SMR-01, NNRD, SMR-04 and SICSAG data (controller of linked data: ISD) Peer-reviewed articles, papers & PhD/Masters theses Anonymised and aggregated Small numbers suppressed DATA FLOW Blue = Identifiable data Green = Pseudonymised data Red = Anonymised and aggregated Data controller Type of extract received Dataset(s) Country Purpose National Records for Scotland (NRS) birth register Scotland NRS Pseudonymised Case ascertainment Scottish Morbidity Record-02 (SMR-02) Scotland ISD Pseudonymised Maternity data Scottish Birth Record (SBR) Scotland ISD Pseudonymised Maternity data Scottish Morbidity Record-01 (SMR-01) Scotland ISD Pseudonymised Longitudinal analysis, validation Scottish Intensive Care Society Audit Group (SICSAG) Scotland SICSAG Pseudonymised Maternal intensive care data Scottish Morbidity Record-04 (SMR-04) Scotland ISD Pseudonymised Perinatal mental health data National Neonatal Research Database (NNRD) England, Scotland and Wales NDAU Identifiable Neonatal care data
