Palliative Care Research Network - Advancing Research for Quality of Life
Professor Joanne Reid chairs the Palliative Care Research Network (PCRN), a leading network for palliative care research on the island of Ireland. PCRN members undertake internationally recognized research to enhance palliative care knowledge and improve the quality of life for individuals with life-limiting conditions. The network's strategic plan focuses on research leadership, capacity building, community involvement, and knowledge dissemination. Key achievements include increased membership, diversity, funding leverage, publications, and research engagements. PCRN's efforts aim to advance understanding and care for people with life-limiting illnesses, involving service users, carers, and the community in collaborative research initiatives.
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Presentation Transcript
PCRN Vision As the leading network for palliative care research on the island of Ireland, PCRN members undertake internationally recognised research that enhances palliative care knowledge and expertise and improves the quality of life of people with life limiting conditions
Palliative Care Research Network 54 PCRN Members 9 Universities and Palliative Care Providers 9 Disciplines
Palliative Care Research Network 2020 Highlights Collaborative and Coherent Research Community 5 new PCRN Members Prof Assumpta Ryan (UU), Prof Maria Brenner (TCD), Dr Maura Dowling, (NUIG), Dr Tony Foley (UCC), Prof Nicole Muller, (UCC) All Ireland Investment AIIHPC Hosting EAPC International Seminar
PCRN Strategic Plan 2017 -2022 Research Leadership and Capacity Improve QoL for people with life limiting conditions Involvement Collaborative and Coherent Research Community Service User, Carer and Community Improve Quality of Life Disseminate Research Knowledge PCRN Sustainability
Palliative Care Research Network 2017-2020 Key Achievements PCRN membership increased Increase in diversity 3m EU funding and 2.3m national funding leveraged Over 400 peer-reviewed publications 50 research engagements 3 Annual Symposia and 2 Interdisciplinary Seminars
Building Leadership and Capacity Research Leadership and Capacity Research Leadership and Capacity All Ireland Palliative Care Research Priorities 147 early and mid-career researchers Hospices and clinical sites Leading on EU and national research Research Leadership and Capacity Leadership roles and award recipients
Service User, Carer Involvement Service User and Carer Involvement Reviewing research proposals Providing guidance and input Planning and participation at research and panel members Dissemination
Research Knowledge Transfer & Exchange, Dissemination and Implementation Disseminate Research Knowledge EMTReK including a new eLearning: Developing A Dissemination Strategy For Health Research Online workshop: Introduction to Implementation Science for Palliative Care Research Prof Catherine Hayes, Trinity College Dublin and Dr Mark Pearson, Hull York Medical School
Research Knowledge Transfer & Exchange, Dissemination and Implementation Disseminate Research Knowledge Research zone on The Palliative Hub Professional Public and patient webinar Ex Met Study Blog articles, project flyers, newsletter, promotional video Website launch
Impact of Palliative Care Research Network at International Level PCRN Sustainability Source of Funding EU Horizon 2020 Research Area Psychosocial and educational interventions for people with advanced cancer and carers (DIADiC) PCRN Collaborations Prof Phil Larkin (UCD); Prof Suzanne Guerin (UCD); Assoc. Prof Michael Connolly (UCD); Prof Charles Normand (TCD); Prof Joanne Reid (QUB); Prof Kevin Brazil (QUB) EU Horizon 2020 Better treatments for breathlessness in palliative and end of life care (BETTER-B) Family carer decision support interventions for people with dementia (MySupport Study) Anticipatory care planning intervention for older adults at risk of functional decline Prof Karen Ryan (UCD); Prof Charles Normand (TCD) EU Joint Programme of Neurodegeneration Lead Prof Kevin Brazil (QUB); Dr Gillian Carter (QUB); Dr Nicola Cornally (UCC) EU Cross Border Health Intervention Trials Lead Prof Kevin Brazil (QUB); Dr Frank Doyle (RCSI); Dr Peter O Halloran (QUB) Dr Gillian Carter (QUB) and clinical partners
Impact of Palliative Care Research Network At National Level PCRN Sustainability Future planning (PELCI) PallCare4Dementia Public health approach to palliative care and advance care planning Models for rehabilitative palliative care Clinical phenotype for cachexia in chronic kidney disease Progressing Sl intecare delivery from proposal to implementation Shaping palliative care policy Economic policy evaluation of palliative care in Ireland Support exchange between patients and family care givers in palliative care Prescribing and physiotherapy guidelines
Thank you www.thepalliativehub.com/research www.aiihpc.org
