Patient Decision Aids for Acne and Psoriasis
Patient Decision Aids developed by a team of dermatologists aim to inform patients about treatment options and facilitate shared decision-making with physicians. These aids provide comprehensive information, elicit patient preferences, and reduce decisional conflict in managing acne and psoriasis. Pilot findings show increased patient knowledge and reduced conflict while helping patients make informed treatment choices.
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PATIENT DECISION AIDS: ACNE AND PSORIASIS Principal Investigator: Robert Dellavalle, MD PhD Consulting Dermatologist Developer: Jerry Tan, MC FRCPC Authors: Marilyn Cameron2, Jerry Tan1,2, Ashlyne O Neil3, Chelsea McLellan3, Andrea Reed2, Robert Dellavalle4,5,6 1University of Western Ontario, Schulich School of Medicine and Dentistry; 2Windsor Clinical Research Inc., Canada; 3University of Windsor, Canada; 4Dermatology Service, Eastern Colorado Health Care System, US Department of Veteran Affairs, USA; 5 Department of Dermatology, University of Colorado Anschutz Medical Campus, USA; 6Department of Epidemiology, Colorado School of Public Health, USA. This work was funded by a Pfizer Independent Grant for Learning and Change and the American Academy of Dermatology, and a Valeant Unrestricted Educational Grant. Additional group training and support was provided by Abbvie Innovation.
SHARED DECISION-MAKING AND PATIENT DECISION AIDS Patient Decision Aids are tools to: inform patients of treatment options elicit their preferences/values related to treatment. Facilitate shared decision making between patients and physicians 1. 2. Patient s preferences and values Disease and treatment information 3. Best clinical evidence + physician guidance Increase patient knowledge Reduce decisional conflict Reduced patient passivity in decision making Improved patient practitioner communication Shared Treatment Decisions Stacey D, L gar F, Lewis K, et al. Decision aids for people facing health treatment or screening decisions. The Cochrane Library. 2017 Jan 1.
DECISION AID DEVELOPMENT: EVIDENCE BASED AND PATIENT INFORMED Literature review Physician Online Survey Focus Groups Evidence based content Patient-friendly language and format International Patient Decision Aids Standards 34 acne patients Reviewed draft content and format Format and content as advised by patients and physicians 13 psoriasis patients Two rounds of focus groups discussed draft content and format 51 physicians Reviewed both patient decision aids and patient summary page Transformation Online Survey Final PDA Pilot Testing
PILOT FINDINGS AND IMPACT Acne Decision Aid Acne affects 80-100% of people in their lifetime or 50 million Americans 10 patients Reduced decisional conflict Increased knowledge Psoriasis Decision Aid Psoriasis affects 2-3% of the population or 7.5 million Americans 16 patients Increased knowledge Increased decisional conflict immediately, but reduced it long-term (4 wk follow up) These decision aids are unique in providing acne and psoriasis patients with comprehensive treatment information and decision guidance to facilitate shared decision making with their physician.
HELPING PATIENTS DECIDE Referred to a decision aid by a health care professional Patient seeks professional help for symptoms Patient attends consultation with physician A shared treatment decision is made Patient uses the decision aid Searches for the decision aid online May or may not be diagnosed by a physician Acne Decision Aid: https://www.informed-decisions.org/psoriasispda.php Psoriasis Decision Aid: https://www.informed-decisions.org/acnepda.php To view both: www.informed-decisions.org
