Professional Research Skills in Palliative Care Workshop
Explore the impact evaluation framework and key outcomes of a workshop focused on building professional research skills in palliative care. Learn about the literature findings, research principles, challenges, and desired impacts of patient and public involvement (PPI) in research projects. The presentation emphasizes audience-focused, evidence-based impact narratives and highlights the importance of mutual respect, diversity, and inclusion in promoting change and improving awareness in hospice and palliative care settings.
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Presentation Transcript
PPI Impact Evaluation Framework Launch, Jane Clare, AIIHPC and Padraig Cronin UCC Early Career Researcher Forum: Building Professional Research Skills in Palliative Care Workshop professionalpalliativehub.com/research /
The Literature What does the literature tell us? PPI contribution has been shown to improve the relevance, acceptability, and accessibility of academic research Hospices and care facilities that engage in active research have also been shown to have better patient outcomes and experience Systematic reviews reveal over 65 individual frameworks for PPI evaluation research illustrating a one size fits all approach is not optimal Researcher Impact Framework Building Audience-focused, Evidence-based Impact Narratives, created by Trinity College Dublin P draig Cronin (122709191)
Project Background What are the desired aims of this project? PPI The All-Ireland Institute of Hospice and Palliative Care would Contributors Contributors Insights Insights like to develop a framework to measure the impact of PPI PPI Researchers Researchers on its research projects What are the most important research principles of PPI according to contributors and researchers? What are the most significant research challenges of PPI according to contributors and researchers? What are the desired impacts of PPI contributors from their participation in research? P draig Cronin (122709191)
The Focus Groups PPI PPI Contributors Contributors Principles of PPI Principles of PPI Challenges of PPI Challenges of PPI 1.5hrs Palliative Palliative Care Researchers Care Researchers Impacts of PPI Impacts of PPI P draig Cronin (122709191) P draig Cronin (122709191)
Key Outcomes Principles of PPI Principles of PPI Focus Group Transcripts Mutual Respect Diversity & Inclusion Meaningful Research Empowerment Challenges of PPI Challenges of PPI Financial and Bureaucratic Issues Not Feeling Heard Emotional Impact Lack of Formal Training Impacts of PPI Impacts of PPI Developing Knowledge Within Hospice And Palliative Care Empowering Individuals And Fostering Collaboration 1). 1). 2). 2). 3). 3). 4). 4). Promoting Change Within The Training Of Healthcare Workers Braun & Clarke 6 Step Thematic Analysis Improving Awareness Of The Needs Of Palliative Care P draig Cronin (122709191) P draig Cronin (122709191)
PPI Impact Evaluation Framework for Palliative and Health Care Research This framework will support researchers to measure: 1. Overall Public and Patient Involvement 2. Co-Produced Outputs across Research Cycle 3. Partnerships and Collaborations Established 4. Public Awareness and Media Engagement 5. Overall PPI Research Impact
PPI Impact Evaluation Framework for Palliative and Health Care Research PPI Impact Evaluation Form: to be completed by the researcher(s) in collaboration with PPI contributor(s) PPI Contributor Feedback Form: to share with PPI Contributor(s) so they can document their experience PPI Reporting Checklist: to help researchers determine best practice for including PPI in research design, delivery and dissemination including reporting research outputs
PPI Impact Evaluation Framework for Palliative and Health Care Research Framework will be available from next week on the Palliative Hub Professional: https://professionalpalliativehub.com/research/ Webinar to follow in the coming weeks! Please contact Jane jclare@aiihpc.org with and questions
Files will be available on Past Events - The Palliative Hub Professional (professionalpalliativehub.com/events) ) Thank you for your time
