Promise of Disability Health Research
The importance of including people with disabilities in health research, focusing on addressing disparities and promoting disability justice. NIH's recognition, core components, and call for inclusive scientific workforce are highlighted.
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No Research About Us Without Us: The Promise of Disability Health Research
Nothing About Us To me, disability justice means that we re taking into account people of color, and people that are marginalized within the disability community, said Mr. Moore, the founder of Krip-Hop Nation, adding, we re taking these principles and really living by them, not only in organizations but in our own lives.
Supporting the inclusion of people with disabilities in the scientific workforce and in the research enterprise
Supporting the inclusion of people with disabilities in the scientific workforce and in the research enterprise
Supporting the inclusion of people with disabilities in the scientific workforce and in the research enterprise
NIH Designates People with Disabilities as a Population with Health Disparities In September, Dr. Eliseo P rez-Stable, director of the National Institute on Minority Health and Health Disparities (NIMHD), designated people with disabilities as a population with health disparities for research supported by NIH.
Core Components of NCDs Framework to End Health Disparities of People with Disabilities
Core Components of NCDs Framework to End Health Disparities of People with Disabilities
Core Components of NCDs Framework to End Health Disparities of People with Disabilities
National Advisory Council on Minority Health and Health Disparities (NCMHD Working Group on Persons Living with Disabilities)
Participatory Action Research and Social Validity 15 commonly used consumer involvement procedures and assesses the degree to which they can help protect research against 7 distinct threats to social validity. Partners in advocacy as a model procedure to protect social validity.
Designing research for adoption and sustainability
Different (human) needs for supports to participate in research Horner-Johnson W, Bailey D. Assessing Understanding and Obtaining Consent from Adults with Intellectual Disabilities for a Health Promotion Study. J Policy Pract Intellect Disabil. 2013 Sep;10(3):10.1111/jppi.12048. doi: 10.1111/jppi.12048. PMID: 24223054; PMCID: PMC3821759. PCORI s engagement investments to improve health with people with IDD, e.g., Building a United IDD Research Agenda Together (Parthenia Dnora, Virginia Commonwealth University, awarded 2022) available at: https://www.pcori.org/research-results/2022/building-united- idd-research-agenda-together
Adoption of Nothing without Us values in equity research
In the summer of 2018, Bob Liston spoke with Jenny Montgomery about the NIH All of Us Research Program.
