Stanford Cystic Fibrosis Pediatric to Adult Transition Process Overview
Explore the transition process for pediatric cystic fibrosis patients at Stanford, involving gradual preparation, consensus-building, and interdisciplinary support. Key elements include transition booklet distribution, joint meetings between pediatric and adult teams, and ongoing education for patients and families.
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Presentation Transcript
Stanford Cystic Fibrosis Pediatric to Adult Transition Process Mary Helmers, RN BSN Pediatric Cystic Fibrosis Nurse Coordinator March 18, 2023 CF Education Day 1
Pediatric Program 209 patients 8 Pediatric Pulmonologists 1 Nurse Practitioner 6 Pulmonary Fellows 1 Nurse Coordinator 1 Part-time CF Clinic Nurse
Adult Program 204 patients 2 Pulmonologists 2 Nurse Practitioners 1 Pulmonary Fellow 2 Nurse Coordinators
03 07 04 01 Transition Booklet given to patient/parents at age 8 02 Pediatric team members attend first Adult CF clinic visit Consensus reached on when to transition patient, individualized for each young adult 06 05 Preparing for transition during the final year at Pediatric Clinic Quarterly Transition Zoom meetings with both Ped s and Adult CF teams to review patients 16 and older Adult CF team Interdisciplinary Transition Report and/or Adult provider comes to last Pediatric clinic in person in person Education of patients and families is ongoing Formally starts for the child at age 8 Virtual meeting with Adult CF Team members and Ped s patients and families generated in Epic by Pediatric CF Nurse Coordinator Title Here Title Here Pediatric to Adult Transition Plan
Parent Panelist Amy Baugh Linda Conway Patient Panelist Hector B.
