SWAG Network Sarcoma Cancer Research Update
Stay informed with the latest research updates from the SWAG Network Sarcoma Cancer Clinical Advisory Group. Explore ongoing studies, recruitment opportunities, and training schemes in the field of sarcoma cancer research. Discover key themes and recommendations for enhancing participant communication and study team interaction.
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SWAG Network Sarcoma Cancer Clinical Advisory Group Research Update - Claire Matthews 18/10/2022
National Sarcoma Cancer Research Recruitment Apr 21 - Mar 22 Apr 22 - Sep 22
National vs Regional Recruitment National WE region
Sarcoma Cancer Studies - open and in seet up in SWAG region CPMS Study ID Short Name Sites Opening Closure Sample Size Eng England Recruits BI Trial 1403-0008 SAL 49536 29/07/2022 29/11/2023 19 1 FaR-RMS MUS, BHOC, RUH, BRHC 42490 17/09/2020 28/02/2029 310 81 RAGNAR - 42756493CAN2002 BRHC, BHOC 42003 05/01/2020 15/11/2026 21 24 ICONIC 41346 25/10/2019 02/06/2023 134 165 SPECTA (EORTC 1553) BRHC 33914 07/06/2018 30/09/2027 288 122 rEECur BHOC, BRHC 17239 18/12/2014 30/09/2022 135 132 NIHR BioResource - Rare Diseases SAL, BHOC, NBT, RUH, BRHC, 15941 13/09/2012 30/11/2022 22000 15,386 51601 Paediatric (2-21Years)EWS BHOC - in set up 29/07/2022 03/12/2023 - In set up
Associate PI Scheme https://www.nihr.ac.uk/health-and-care-professionals/career-development/associate-principal- investigator-scheme.htm A six month in-work training opportunity, providing practical experience for healthcare professionals starting their research career. People who would not normally have the opportunity to take part in clinical research in their day to day role have the chance to experience what it means to work on and deliver a NIHR portfolio trial under the mentorship of an enthusiastic Local PI. FaR-RMS: An overarching study for children and adults with Frontline and Relapsed RhabdoMyoSarcoma Open 17/09/2020 - 28/02/2029 Currently no APIs signed up in our region
PRES 2021/22 Report Summary
Recommendations and next steps Key themes from this year's feedback include: Communication with participants Results to individual tests. Clear information about how to get in contact with the study team. Explore how participants can be offered more diverse clinic times, including out-of- hours and weekends. Discussions with participants and research staff about the areas that are most important. Projects which aim to improve the participant experience.
NIHR ODP Open data platform. Data on performance across whole CRN, including all specialty areas NIHR Be Part of Research See which studies are open across the country National Cancer Research Institute Portfolio Maps View current national portfolio of open, closed and in set up cancer studies Find a Clinical Research Study (ODP) Search for a study to fit criteria. Good for horizon scanning, eligibility criteria
Research Delivery Manager claire.matthews@nihr.ac.uk Research Portfolio Facilitator rebecca.pienaar@nihr.ac.uk Sub-specialty Lead adam.dangoor@uhbw.nhs.uk
