The Health Information Research Infrastructure
This project, funded by the European Union, aims to enable top-level research, connect networks, improve public health, and support evidence-informed policy. It focuses on making quality data, information, and tools available, strengthening scientific knowledge, promoting cooperation, and supporting expertise development in the health sector. Provide services for policy-making, knowledge translation, health reporting, analysis, research contextualization, and data collection. Also aid in finding guidelines, tools, networks, experts, and data, and offer computing, interoperability, legal and ethical support, and tool services. Additionally, provide training programs, expert support, and overview training services.
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Presentation Transcript
The Health Information Research Infrastructure Assembly of Members 12 March 2019 This project is funded by the Health Programme of the European Union Name: Petronille Bogaert, Linda Abboud and Herman Van Oyen Institution: Sciensano, Belgium Contact: infact.coordination@sciensano.be
The concept Enable top- level research Connect networks Improve public health Support evidence informed policy
The goals To make available and share quality data, information and tools To strengthen scientific knowledge, promoting scientific cooperation and integration To support expertise development, methodological innovation and use of health information to inform policy
Scope: fill the gap Population health and health care systems Insurance data Big data Disease Registries Vital statistics Indicators Hospital Care data Survey data Guidelines and manuals
What? Health Information Research Infrastructure Distributed Research Infrastructure: National network (NN) units within MSs, A domain specific network is generally a group of collaborating researchers on a common health topic or method. A central office, National network Participating domain specific networks (DSN) and their research communities, Domain specific network Domain specific network Central office with platform A web based platform that delivers services, The national network is a consortium of relevant national actors. programmes (in contact with NN). Domain specific network A set of core RI activities in the form of focused projects and National network
Services Policy-making Knowledge translation Health reporting Analysis, research contextualisation Data collection
Services Find guideline or tool Find network DSN or NN Find expert Who is Who? Find data
Services Computing services Interoperability services Legal and ethical support Tool services
Services Overview training programs Training services Expert support
Services Engagement with policy makers Knowledge translation support Advocate for EU health information Horizon scanning
Services International Expert groups
Added value for research 1) EU-comparative data 2) Collaboration - - - - - - - FAIR health information Data quality checks Larger cohorts for research Enhanced data access flow Structured scientific exchange Produce quicker results Ensure ethical and legal compliance - Organize and connect public health expertise and systems Create synergies between projects and health information activities Better access to existing knowledge and expertise - -
Added value for society Decision makers Citizens and health care providers - Quality information for evidence based decisions. Better preparedness. International comparison: evaluate and discuss how to tackle similar challenges. Programme evaluation. - Improved health and wellbeing by enhanced monitoring of health risks, health status, health determinants, and the safety and quality of healthcare services. Evidence-based care. Reduced health inequalities. - - - - - Administrators/ data providers Financers - Reduce burden by providing overview of international data collection reduce duplication. Assist in obligation to provide data to international sources. - Better value for money in international health information activities. Optimise funds allocation. - -
Research Infrastructure outcomes FRAGMENTATION INEQUALITIES PROJECT BASED CONNECTING STAKEHOLDERS AND INFORMATION CAPACITY TRAINING KNOWLEDGE TRANSLATION Disperse knowledge Incomplete data Difficult access EFFICIENT (RE)USE OF DATA SUSTAINABLE INFRASTRUCTURE KNOWLEDGE DEPOT Differences in quality Diversity in research capacity No long term planning Waste of resources Duplication RETURN OF INVESTMENT
www.inf-act.eu @JA_InfAct This project is funded by the Health Programme of the European Union
