CCS Writing & Research: Supporting Students in Writing Tasks
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National Core Indicators Adult Family Survey Results 2010-2011 Josh Engler, Human Services Research Institute www.nationalcoreindicators.org jengler@hsri.org July 13, 2012
What is NCI? NCI is a voluntary effort by public developmental disabilities agencies to measure and track their own performance. Collaboration began in 1997 Currently 35 states represented plus 23 sub-state entities Coordinated by HSRI and NASDDDS
What is an Indicator? Indicators are standard measures used across states to assess the outcomes of services provided to individuals and families. Indicators address key areas of concern including employment, rights, service planning, community inclusion, choice, and health and safety.
NCI Performance Assessment Employment Community Participation Choice & Decision making Relationships Health and Welfare Respect & Rights Medications Safety Service Coordination Staff Stability Personal Outcomes Health, Welfare, System Information & Planning Access & Service Delivery Choice and Control Community Connections Satisfaction Outcomes Family Outcomes
NCI Participating States 2010-2013 NH ME WA MA OR NY WI SD RI MI PA CT NJ OH MD IN IL UT DC VA MO KY CA NC HI OK AR SC AZ NM GA AL MS LA TX FL 2010-11 24 States 2011-12 29 States 2012-13 35 States
http://www.steadyvision.com/hsri/nci/i/nci-design-090711-2.jpghttp://www.steadyvision.com/hsri/nci/i/nci-design-090711-2.jpg www.nationalcoreindicators.org
What are the data sources? Adult Consumer Survey Family Survey Adult Family Survey (at home, 18+) Family Guardian Survey (out-of-home) Children Family Survey (at home, <18) System Indicators
Family Survey Design Administered by mail Includes demographics, six outcome areas Combination of 5-point scale and yes/no response options, open-ended comments 79 questions on AFS, 53 on FGS, and 67 on the CFS will be shorter in next round! 8
Selected Results 2010-2011 Adult Family Survey
Sample and Analysis 9 states mailed 13,270 surveys States- Florida, Georgia, Louisiana, North Carolina, New Jersey, New Mexico, Ohio, Oklahoma, and Pennsylvania 3,884 returned; 3,654 valid surveys Response rate 29% (valid 28%) State averages are statistically tested against national average NCI Adult Family Survey Results 2010-2011 10
Respondent Demographics Relationship Respondent Age 5% 8% 11% 8% 31% Under 35 Parent 35-54 Sibling 55-74 53% 84% Other 75+ 64% over age 55 NCI Family Survey Results 2010-2011 11
Number of Adults Living at Home 5% 15% 29% One Two Three Four or More 51% Florida NCI Family Survey Results 2010-2011 12
Out-of-Pocket Expenses 3% 19% 26% Nothing $1-100 $101-$1,000 $1,001-$10,000 $10,000+ 16% 36% Florida NCI Family Survey Results 2010-2011 13
Household Income 12% Below $15,000 27% $15,001- $25,000 14% $25,001- $50,000 $50,001- $75,000 Over $75,000 19% 28% 46% below $25,000 NCI Family Survey Results 2010-2011 14
Information and Planning Florida NCI Family Survey Results 2010-2011 15
Information and Planning Florida NCI Family Survey Results 2010-2011 16
Information and Planning Does your family member s case manager/service coordinator tell you about public services that you are eligible for (e.g., food stamps, Supplemental Security Income [SSI], housing subsidies, etc.)? State Always Usually Sometimes Seldom Never N NCI Average 36% 25% 14% 10% 16% 3,358 Range of always responses, by state. 15% - 47% NCI Adult Family Survey Results 2010-2011 17
Information and Planning Our case manager makes sure our family's opinions and decisions are important and taken into consideration when planning. (We need) better knowledge of available resources. If you don't know what to (or how to) ask, you don't find out information. NCI Adult Family Survey Results 2010-2011 18
Access and Service Delivery Please edit the Footer and replace with presentation title 19
Access and Service Delivery Please edit the Footer and replace with presentation title 20
Access and Service Delivery Do you feel that your family member s day/employment setting is a healthy and safe environment? State NCI Average Always 66% Usually 27% Sometimes Seldom 5% Never 1% N 1% 2,797 Range of always responses, by state. 53% - 77% NCI Adult Family Survey Results 2010-2011 21
Access and Service Delivery We like our case worker, and all the people where our daughter gets "vocational training." We are happy with our in-home waiver and our case worker. Dental - many dentists not equipped/trained to work with special needs. I am paying out of pocket for quality dental care by a dentist and X-rays and cleaning 3-4 times a year. NCI Adult Family Survey Results 2010-2011 22
Choice and Control Please edit the Footer and replace with presentation title 23
Choice and Control Please edit the Footer and replace with presentation title 24
Choice and Control We do have "freedom of choice" to choose a case management provider, but do not have control over the hiring. We can express grievances with provider if necessary. We have the right to accept compatible workers or not to accept workers that are not compatible. [I am satisfied with] having control over the hiring of support workers I am always informed about how the money is spent. NCI Adult Family Survey Results 2010-2011 25
Community Connections Please edit the Footer and replace with presentation title 26
Community Connections Volunteer activities have increased his self-esteem and sense of belonging in the community. We definitely need more resources for persons who have a more complex array of disabilities, not only for those whose disabilities are milder, more interaction with non disabled peers, one on one. NCI Adult Family Survey Results 2010-2011 27
Satisfaction Please edit the Footer and replace with presentation title 28
Satisfaction Overall, are you satisfied with the services and supports your family and family member currently receive? State NCI Average Always 40% Usually Sometimes 43% Seldom Never 2% N 12% 2% 3,451 Range of always responses, by state. 22% - 51% NCI Adult Family Survey Results 2010-2011 29
Outcomes Please edit the Footer and replace with presentation title 30
Outcomes Have the services or supports that you or your family member has received during the past year been either reduced, suspended, or terminated? State Yes No N NCI Average 31% 69% 3,156 Range of yes responses, by state. 13% - 46% *Higher score is negative NCI Adult Family Survey Results 2010-2011 31
Outcomes I am so grateful for the DD Waiver - it keeps my family member safe, busy and gives [individual in services] a meaningful life Sometimes the goals are vague and it's hard to tell if they are being met. I think when you are dealing with our son, the main thing is for him to be happy and content. This is difficult to put down as a goal. NCI Adult Family Survey Results 2010-2011 32
For More information jengler@hsri.org www.nationalcoreindicators.org 33
