Enhancing Organ Transplant Data Systems: Insights from the Data Advisory Committee Update
Gain valuable insights into the functions and challenges faced by the Data Advisory Committee in developing a visionary data set for organ transplantation. Explore the composition of the committee, its vision for data collection and analysis, key considerations, challenges, and potential future developments.
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Presentation Transcript
Data Advisory Committee Update Charlie Alexander RN, MSN, MBA
DAC Charge and Functions Seek broad input in developing a long term, innovative vision for the OPTN/SRTR data set Systematic and smoothly functioning process for the identification of OPTN data to be collected Methods of collection Types of products to be supported by the system Analyze and consider advances in both organ transplantation and technology in order to inform this vision
Committee Composition Committee Position Name Institution Name Charles Alexander RN, MSN, MBA S. Joseph Kim M.D., FRCPC Yael Coppleson Sandy Feng MD, PhD Chair Vice-Chair At Large At Large The Living Legacy Foundation of MD Toronto General Hospital New York-Presbyterian Hospital UCSF Medical Center Alexandra Glazier JD, MPH Richard Hasz Jr , MFS Ian Jamieson MBA, MHA Maryl Johnson MD Alan Leichtman MD Robert Merion MD Mike Peterson Jesse Schold PhD, M.Stat, M.Ed Stuart Sweet M.D., Ph.D. James Wynn M.D. At Large At Large At Large At Large At Large At Large At Large At Large At Large At Large New England Organ Bank Gift of Life Donor Program Duke University Medical Center University of Wisconsin University of Michigan Medical Center University of Michigan Medical Center NeuStar, Inc. Cleveland Clinic Foundation St. Louis Children's Hospital University of Mississippi Medical Center
Vision Construct a vision for data collection, reporting, and analysis for OPTN and SRTR Drive transplant system improvement Identify areas of improvement in existing data systems
Considerations Collaborate with organ-specific committee experts Review existing OPO data and metric projects Assess work that has already been completed Keep in mind impact on research Remain mindful of data burden and community support
Challenges Consensus among interested parties Data burden on members Work within existing framework Final Rule OPTN Principles of Data Collection OPTN IT development
Potential Futures Develop vision for data systems Create metrics that drive increases in organ donation and utilization Redefine: What is a successful transplant? Inform allocation policy Remain flexible to accommodate transplant community s medical and technological advances
Questions? Thank you! Charlie Alexander RN, MSN, MBA, Committee Chair calexander@thellf.org Kristina Tyler JD, Committee Liaison Kristina.Tyler@unos.org
