Global NET Patient Advocate Summit 2019
Join the INCA 7th Global NET Patient Advocate Summit in Plovdiv, Bulgaria on June 18th-19th, 2019. Explore challenges in access to diagnostics and treatment for NET patients worldwide, featuring online questionnaires translated into 10 languages. Learn how to map availability and cost of treatments, measure awareness, and ensure reliable survey data. Open to NET patients, healthcare professionals, and medical professionals involved in multidisciplinary care. Register now for a comprehensive discussion on improving NET patient care globally.
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Presentation Transcript
INCA 7thGlobal NET Patient Advocate Summit Dirk Van Genechten Belgian NET & MEN Kanker Vice president Plovdiv, Bulgaria 18th 19th June 2019
SCAN Survey of Challenges in Access to diagnostics and treatment for NET patients Plovdiv, Bulgaria 18th 19th June 2019
The team: The Access Committee Dirk Van Genechten Mark McDonnell Christine Rodien-Louw Sugandha Dureja Teodora Kolarova Kristina Slavova Plovdiv, Bulgaria 18th 19th June 2019
What? Two online questionaires Patients HCP s Will be translated in 10 of the most spoken languages English, Spanish, Italian, Arabic, German, French, Japanese, Mandarin, Hindi and Russian Plovdiv, Bulgaria 18th 19th June 2019
Why? To map the availability (and cost price) of diagnostics and treatments for NET patients world wide. Measure awareness and level of understanding Of patients and of HCP s Plovdiv, Bulgaria 18th 19th June 2019
How? Survey must be statistically reliable Much effort is put into this Soft quotas will be used Quota parameters are gender, age and primary site Survey should take no longer than 15 Plovdiv, Bulgaria 18th 19th June 2019
Who? NET patients worldwide, Health Care Professionals worldwide => all medical professionals involved in multidisciplinary care and GP s. SCAN should be promoted by INCA members and HCP s for maximum result! Plovdiv, Bulgaria 18th 19th June 2019
Questions? Plovdiv, Bulgaria 18th 19th June 2019
