Rare & Complex Urology Book Overview
Explore the insightful chapters and contributions in the Rare & Complex Urology book, covering areas like patient care numbers and program development, authored by leading experts in the field.
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ERN eUROGEN Book On Rare & Complex Urology ERN eUROGEN Book Jen Tidman, ERN eUROGEN Business Support Manager 14 September 2022 Your ERN logo here Co-funded by the EU
Agreement & Cover Agreement Agreement signed on 29 January 2021 between Prof. Wout Feitz, ERN eUROGEN HCP Network Coordinator Representative, Radboudumc and Elsevier (copy in Contributor Pack for reference). Cover Coordination Team provided with a selection of potential options and chose most appropriate one. Your ERN logo here 2 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Protocol 1. Expertise Area Coordinators (EAC) = lead authors for the clinical chapters. They should write and review their draft chapters with at least two other experts from their expertise area; where there is a vice-EAC, they should be one of the experts. 2. Each chapter should therefore be written by a minimum of three experts, and these should be from different ERN eUROGEN HCPs. Therefore, where the EAC and vice-EAC are from the same HCP, this means there will need to be at least four experts involved. 3. Each chapter should be peer-reviewed and agreed upon by at least one ePAG Advocate. Your ERN logo here 3 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Protocol 4. Once written/peer-reviewed, chapter & completed sign-off template (in Contributor Pack) sent to Wout Feitz & Editorial Team. 5. Editorial Team review the chapter & ensure that it meets agreed standards, asking for clarification where required. 6. Once chapter agreed upon, Editorial Team ask lead author to submit to Elsevier via EMSS. Your ERN logo here 4 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Table of Contents & Contributors Introductory Chapters CHAPTER TITLE LEAD AUTHOR IN PROGRESS? Introduction Wout Feitz The European Association of Urology (EAU) and ERN eUROGEN Chris Chapple The EU/EC view on the ERN Programme and Development Enrique Terol Your ERN logo here 5 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Table of Contents & Contributors Overview Chapters CHAPTER TITLE LEAD AUTHOR CO-AUTHORS IN PROGRESS? ERN eUROGEN Patient Care Numbers: Follow up of figures 2013-2021 from Healthcare Providers (HCPs); Members and Affiliated Partners. Wout Feitz ?Michelle Battye, Loes Oomen, Darren Shilhan The Patient View of the ERN Programme: Share, Care, Cure and Pathways Dalia Aminoff Serena Bartezzati, Nicole Schwarzer, Claire Harkin, Kate Tyler, Stephen Leusenkamp, John Osborne, Kenneth Manzie, Rob Cornes FIRST DRAFT SUBMITTED Cross-ERN Actions and European/Global Collaborations by ERN eUROGEN Wout Feitz ?Michelle Battye, Jen Tidman Development of the ERN eUROGEN Patient Registry Loes Van Der Zanden Wim Witjes, Lotte Boormans, Isabel Hageman Development of ERN eUROGEN and EAU Clinical Practice Guidelines (CPGs) and Clinical Decision Support Tools (CDSTs) Wout Feitz ?Ramnath Subramaniam, Michelle Battye, TBC Your ERN logo here 6 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Table of Contents & Contributors Clinical Chapters: WS1 CHAPTER TITLE LEAD AUTHOR CO-AUTHORS POTENTIAL AUTHORS IN PROGRESS? EA 1.1: Complex Genital Reconstructions; Differences in Sex Development Katja Wolfenbuttel Verena Ellerkamp, ?TBC EA 1.2: Bladder Exstrophy/Epispadias Alaa El Ghoneimi Gundela Holmdahl, ?TBC EA 1.3: Rare Urologic Stone and Kidney Disease TBC TBC, TBC EA 1.4: Non-Syndromic Urogenital Tract Malformation Giovanni Mosiello Kate Abrahamsson, ?TBC EA 1.5: Posterior Urethral Valves Yazan Rawashdeh Rafal Chrzan, ?TBC EA 1.6: Posterior Hypospadias Magdalena Fossum Alessandro Morlacco, Lisa rtqvisto, Yazan Rawashdeh EA 1.7: Urorectal/Anorectal Malformation Ivo de Blaauw Herjan van der Steeg, Eberhard Schmiedeke, Paola Midrio Your ERN logo here 7 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Table of Contents & Contributors Clinical Chapters: WS2 CHAPTER TITLE LEAD AUTHOR CO-AUTHORS POTENTIAL AUTHORS IN PROGRESS? EA 2.1: Complicated and Complex Pelvic Floor Disorders John Heesakkers Margit Fisch, Tim Ludwig, Laetitia de Kort, Michel Wyndaele, Emilio Sacco EA 2.2: Rare Diseases and Conditions Affecting the Female Urethra TBC TBC, TBC Jos Medina-Polo, TBC EA 2.3 Urethral Reconstruction in Rare Diseases and Conditions Gunter de Win TBC, TBC EA 2.4: Rare Retroperitoneal Diseases and Conditions TBC TBC, TBC Pedro L pez Pereira, Virginia Amesty, Susana Rivas EA 2.5: Interstitial Cystitis Mariangela Mancini Alessandro Giamm , TBC EA 2.6: Adult Urogenital Reconstructive Surgery Laetita de Kort Sara Brucker, Katharina Rall, ?TBC EA 2.7: Surgery for Transgender Patients Silke Riechardt Timo Nieder, Katharina Grupp, ?TBC Your ERN logo here 8 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Table of Contents & Contributors Clinical Chapters: WS3 CHAPTER TITLE LEAD AUTHOR CO-AUTHORS POTENTIAL AUTHORS IN PROGRESS? EA 3.1: Penile Cancer Oscar Brouwer Manon Vreeburg, TBC, TBC EA 3.2: Testicular Cancer Yue Che Tomas Buchler, Tahlita Zuiverloon, Arnout Alberts, Ana Fr be, Marija Mileti EA 3.3: Adrenal Tumours Hans Langenhuijsen TBC, TBC EA 3.4: Abdomino-Pelvic Sarcoma TBC TBC, TBC EA 3.5: Rare Renal Tumour Surgery TBC TBC, TBC Mario Dominguez Esteban Your ERN logo here 9 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Content, Word Count, Abstract & Keywords Content Up to the lead and co-authors logical/realistic noting limitations on time/words/figures. Word count Complete book = 120,000 words. / 30 chapters = 4,000 words per chapter average. Some introductory chapters = shorter, so leeway for other chapters to be longer if required. Abstract & Keywords Required to help readers find the book & individual chapters in online searches. Nonprint items - included in the online version of the chapters, not in the printed book (Elsevier guide in Contributor Pack). Your ERN logo here 10 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Figures & Tables, Referencing, Language Figures & Tables New figures produced by authors: Elsevier production team may be able to redraw the images so that they are suitable for publication at little/no cost. Sample required. Elsevier also offers formal illustration services, but cost for this. Coordination Team has not set a limit for number of figures and tables. Amount necessary to make chapters clear/helpful. Please bear in mind budget limitations and keep numbers reasonable. Coordination Team reserves the right to ask contributors to cut down the number. Referencing Vancouver referencing system (Elsevier's Reference Style Guide in Contributor Pack). Language UK English. I can help with proofreading/copyediting. Your ERN logo here 11 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Format & Permissions Format (in Contributor Pack) Elsevier's Book Layout Example Elsevier's Chapter Template Elsevier's Manuscript Preparation Overview Elsevier's Writing and Copyediting Style Guide ERN eUROGEN Sample Overview Chapter 2021-03-25 Permissions (in Contributor Pack) Email 2022-04-09 outlining Permissions Permissions Author FAQ Permissions Example Cases Permissions Guidelines Permissions log Permissions log (SAMPLE) Permissions Request Form Your ERN logo here 12 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Submission & Timeline/Deadlines Elsevier Manuscript Submission System (EMSS) Elsevier has created accounts for the lead authors and sent them invitation emails with access instructions (guide in Contributor Pack). Timeline/Deadlines Stage Contract Signed Complete Table of Contents & Contributors Deadline First Round of Complete Chapter Manuscripts 31 October 2022 Deadline Complete Book Manuscript Date 29 January 2021 8 April 2022 Achieved? ? ? 31 December 2022 Your ERN logo here 13 19 April, 2025 This presentation is owned by the ERN and may contain information that is confidential, proprietary or otherwise legally protected.
Thank you Thank you Thank you! Thank you! Any questions? Any questions? Name: Jen Tidman Email: Jen.Tidman@radboudumc.nl Your ERN logo here Co-funded by the EU
