Supporting Parkinson's Research in Thames Valley DeNDRoN
Dementias & Neurodegenerative Diseases Research Network (DeNDRoN) is the research arm of the NHS dedicated to Parkinson's, ataxia, dementias, Huntington's disease, and motor neurone disease. The Thames Valley DeNDRoN team comprising nurses, doctors, and research support workers covers five counties and conducts various studies to enhance understanding and treatment options for Parkinson's disease. DeNDRoN's Monument Discovery Study aims to identify the early changes in Parkinson's disease progression in order to develop strategies to slow it down. They are actively seeking participants to contribute to this crucial research in Thames Valley.
Download Presentation
Please find below an Image/Link to download the presentation.
The content on the website is provided AS IS for your information and personal use only. It may not be sold, licensed, or shared on other websites without obtaining consent from the author.If you encounter any issues during the download, it is possible that the publisher has removed the file from their server.
You are allowed to download the files provided on this website for personal or commercial use, subject to the condition that they are used lawfully. All files are the property of their respective owners.
The content on the website is provided AS IS for your information and personal use only. It may not be sold, licensed, or shared on other websites without obtaining consent from the author.
E N D
Presentation Transcript
Thames Valley DeNDRoN: supporting Parkinson s research <insert your name and contact details> www.dendron.org.uk
What is DeNDRoN? Dementias & Neurodegenerative Diseases Research Network (DeNDRoN) Research arm of the NHS National organisation Parkinson s, ataxia, dementias, Huntington's disease and motor neurone disease www.dendron.org.uk www.dendron.org.uk
What is a dendron? www.dendron.org.uk www.dendron.org.uk
Thames Valley DeNDRoN Team of nurses, doctors and research support workers 5 counties: Berkshire, Buckinghamshire, Leicestershire, Northamptonshire, Oxfordshire www.dendron.org.uk www.dendron.org.uk
Thames Valley www.dendron.org.uk www.dendron.org.uk
Thames Valley DeNDRoN Team www.dendron.org.uk www.dendron.org.uk
What do we do? Help make more and better research happen in the NHS Run research studies Questionnaires Biomarker studies New or existing drug treatments Studies of non-drug treatments Tissue donation www.dendron.org.uk www.dendron.org.uk
Local Parkinsons research Monument Discovery Study Eye tracking study www.dendron.org.uk www.dendron.org.uk
Monument Discovery Study Aims to Understand the very earliest changes in Parkinson s Develop knowledge about how to slow progression The contribution of participants to this cutting edge research is highly valued www.dendron.org.uk www.dendron.org.uk
Monument Discovery Study We are looking for over 1700 people with Parkinson s, 300 controls and 300 family members Running in six NHS trusts in Thames Valley Parkinson s diagnosis within last three years www.dendron.org.uk www.dendron.org.uk
Monument Discovery Study Blood tests (genetic testing), cognitive and memory assessments, questionnaires, family history, mobility, smell tests, manual dexterity tests Phase 2 (optional): skin biopsy, MRI scan, lumbar puncture www.dendron.org.uk www.dendron.org.uk
HEATHERWOOD & WEXHAM PARK NEWBURY JOHN RADCLIFFE OXFORD ROYAL BERKSHIRE, READING MONUMENT DISCOVERY PARKINSON S STUDY NORTHAMPTON GENERAL MILTON KEYNES GENERAL KETTERING GENERAL HORTON, BANBURY AMERSHAM HOSPITAL STOKE MANDEVILLE MAIN SITE WITH CLINIC SATELLITE SITE FOR RECRUITMENT & REFERRAL www.dendron.org.uk www.dendron.org.uk
Discovery: the research clinic Welcome, questions and consent Clinical assessment with a neurologist Blood test Tea, coffee and biscuits www.dendron.org.uk www.dendron.org.uk
Discovery: the research clinic Tests of memory and thinking Blood Pressure/Pulse/Height/Weight Smell tests Mobility tests Follow-up (every 18 months) www.dendron.org.uk www.dendron.org.uk
www.dendron.org.uk www.dendron.org.uk
Tea & biscuits NEED NICE PHOTO HERE www.dendron.org.uk www.dendron.org.uk
Eye tracking study Looking at changes in eye movements as an early indicator of Parkinson s Using a device that measures eye movements, we can record how your eyes respond to light There seems to be a difference in eye movements between individuals who have Parkinson s and those who do not www.dendron.org.uk www.dendron.org.uk
Eye tracking study Takes approximately 30 minutes You will be asked a few questions about your symptoms and to make some movements Milton Keynes General and John Radcliffe, Oxford www.dendron.org.uk www.dendron.org.uk
Registering your interest We would like to hear from you if you are interested in: taking part in research receiving updates about Parkinson s research offering your views and advice on how to make research more relevant to patients, carers and members of the public www.dendron.org.uk www.dendron.org.uk
Questions or ideas? Get in touch! < add your name, tel and email address > You can make a difference! www.dendron.org.uk www.dendron.org.uk
